Friday 1 February 2019

Three Important Resources


I said this last year that at school, February is the toughest month of the year in terms of mental health challenges.  With that in mind, let me share with you the status of three resources. 

First, CanFASD has just released its first online course to the public, free of charge.  https://estore.canfasd.ca/foundations-in-fasd

This 60-minute course provides all participants with a certificate of completion and is called Foundations.  This course is designed to educate the public who may have no knowledge or misinformation pertaining to FASD.  It is written at the standard reading level of the public and uses lots of fabulous graphics and videos within the instruction.  CanFASD has also provided a postcard that can be shared with anyone you think may benefit from taking this course.   https://drive.google.com/file/d/1D7VPWuYn5y8BpoSenOnTansc7wKuTszd/view?usp=sharing

CanFASD brought together all their experts in collaboration to create this course and the quality absolutely shines through.  It is completely evidence-based, uses the entire CanFASD research library and hired the best of the best in their fields to contribute.  They just completed alpha and beta testing and received at 4.7 out of 5.0 rating after the beta testing.  They are still accumulating feedback data so please take the course and do the feedback survey at the end.  They will use your feedback to continue improving the course.  If you weren’t aware, Canada is the world leader today in FASD research and awareness.  POPFASD from the States, RRFASD from Australia, and sites from England and France are the other main organizations but CanFASD’s library of research is beyond all of them.  Please share the postcard with every single person working with you and/or your child.  The site is using research and data that has been released in the past couple months.  This course is completely current.

Second, the Rural FASD Support Network has been invited to present to several local organizations over the next couple months and wanted to share a sneak peek.  From an educational standpoint, we know 16% of children have sensory processing challenges according to the STAR institute.  https://www.spdstar.org/  We also know 90% of children with FASD will have mental health challenges and 75% of their caregivers will have a mental health breakdown within their lifetime according to CanFASD research.  

The evidence-based approach from the STAR Institute to supporting mental health and sensory processing is as follows:
1) figure out the triggers that is creating the dysregulation and remove them.  
2) establish a safe place and safe person who the individual will implicitly trust in all situations.  You accomplish this through focused relationship.  
3) once the individual is consistently regulated through these two steps, introduce them back into community with peers. 

This method is used in several different applications as well.  As a math teacher, I identify first where the math gaps are and teach those basic skills.  Next, I directly teach the new concept to the class modeling what they need to know.  Last, they get into their small groups and start working on the problems together.  http://www.edu.gov.on.ca/eng/teachers/teacher_guide_math_en.pdf
As a support group leader, we identified the needs of a group and fill them first.  Meet monthly, provide child care, provide community resource leads, and overcome time and money challenges.  We then specifically teach strategies for particular issues using expert presenters and direct support when needed and finally we create mentorships and friendships within the group.  I could go on to lots of other examples, but I suspect you get the idea.

Finally, as a proud Dad, my daughters are following in my writing footsteps.  You may have seen the article they wrote in CBC News https://www.cbc.ca/news/canada/ottawa/sisters-living-with-fasd-point-of-view-1.4970670 but let me share with you the background.  The CBC reporter we were working with is a free-lance reporter, and we thought it was going in the local paper.  The girls told their stories to me who wrote it down for them.  Christine Maki, the reporter, did a masterful job taking those stories and editing them into the finished product you saw.  She was given several photos to choose from and picked the ones you saw.  We were completely shocked when we saw the stories went national.  The girl’s only purpose in sharing their stories was to bring awareness to the public and courage to those with FASD in our local community and it turned into something much bigger than that.  The amount of comments we got from total strangers around the world is amazing.  Between the interview on CBC Radio about the hockey game we attended and the news article https://www.cbc.ca/listen/shows/ottawa-morning/segment/15659647, we got featured on the Ottawa Senators Facebook page https://www.facebook.com/search/top/?q=ottawa%20senators%20fasd&epa=SEARCH_BOX, added to the new CBC Kids website https://www.cbc.ca/kidsnews/post/in-their-own-words-living-with-fetal-alcohol-spectrum-disorder, articles in our local paper https://www.ngtimes.ca/?s=fasd and being interviewed on the local TV station and local radio https://lake88.ca/2019/01/17/in-focus-thurs-jan-17-2019-stacey-crosbie-from-the-local-rural-fetal-alcohol-spectrum-disorder-support-group/.  We say constantly we must get our message out beyond our FASD networks.  We must get into the public eye and gain third party support from the public.  Once again, we have people asking to help who are not directly impacted by this disability.  And that is a good thing.